Hospital and all that Jazz

​I’m sitting in my local pub this evening working on my blog, my usual seat was empty for a couple of weeks as I was in hospital and then recovering. 

​This blog is about what my experience was and how it could have been. I was in hospital for a week because of sepsis and pneumonia. It was the real deal, paradmedics, ambulance, resus, 5 different antibiotics and a few dodgy moments. My sister and mum and my PAs were with me the whole time. I was well enough to come home after a week in the hospital, but I’m still taking it easy. ​Sitting at home, rather than going out has given us a lot of time to think about what had happened and what could have happened.

What would I have done without top notch advocacy from someone who knows me well and has known me for a long time, knows me when I’m well and has seen me struggle before in critical hospital situations?

​Not everyone has this and it highlights again how precarious these situations can be for someone with complex learning disabilities. 
A lot of assumptions were made about my quality of life and what risks I was willing to take (and have taken!) with the love and support of my family and team. That is something which does not seem to change.
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My MBE for Services to People with Complex Needs in The East of England sits still shiny in it’s box and many of the issues that led to that remain relevant.

​Now hopefully back to my main passion… MUSIC… both of the winners of The Christian Raphael Prize at Cambridge Folk Festival are about to do a release and to go on tour. Please follow.
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