Two blogs in just over a week, maybe because I don’t get out a lot! Seriously though I have a couple of things to catch you up on. Medicine
This year we have not been able to have a pre-appointment to take bloods, and check my weight and blood pressure. The Doc focused a lot on MENTAL HEALTH and how I was coping with being SHIELDED during CORONAVIRUS TIMES. He asked how would people know how I was feeling? Was my mood ok? Was I sleeping well? It was really thorough and we talked about the future. My Doc said that I would have to stay SHIELDED for the time being …… but should begin to think about balancing RISK against my MENTAL HEALTH. Maybe a drive in the car or a walk at a very quiet time? At the end of the appointment we checked my Health Action Plan and decided that I really DID need a blood test and that I would go OUT! next week to the surgery during SHIELDED patients TIME. It would drag my Ma out of the door also and maybe begin to build some confidence. At the moment my 3 monthly Dental Appointments and seeing my Neurologist about my epilepsy are all on hold …. So good to know that the GP wanted to be thorough.
Music as medicine While I have been in Lockdown, Music has been Medicine, it can really change how we all feel, I certainly smile! On Saturday my very own Riff Raph Promotions Live Streamed a folk gig, this is what happened.....
Loads of my family and friends watched from their sofas, as did I, and we raised some money. So a big thank you to everyone who joined in and especially to Katherine Priddy, Bella Collins, Tony Phillips, and Mishra. If you would like to watch the gig back you can here -> Riff Raph Promotions Future Folk Gig Music really is Magic, I have made so many friends through it even though I’m stuck at home at the moment. The difficult bits My Ma’s been getting a bit down, my sister had to have a test for Covid-19 and my front gates are still shut, but…. We have been sitting on the front drive pretending it’s the beach watching the world go by and lighting the fire pit. Music, Medicine and the Magic of fire!
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GOOD STUFF Things that are going Ok in Shielded Isolation are that my GP has been great, I’m trying out a video link annual health check. I’ll let you know how that goes. Gov.uk keep sending me ration boxes which given my special diet are not always suitable. I wonder how some elderly, shielded, disabled people can survive on these rations, however there is always a giant onion, mega size toilet roll and plenty of shampoo. REALITY STUFF Missing all of the “inclusion”, being out and about stuff that I love, like Pubs and Gigs and its difficult to find flour for Cakes. Can't really make plans about how the future looks. I am thinking about having to wear a mask and getting used to it, when I am finally let out. Then there’s all the cleaning. Ma is still obsessed with Anti-bacing and I’m having to learn to wash my hands which is a real sensory challenge for me.
I’m trying to watch and find out how people with learning disabilities are being treated during this pandemic. I’ve been getting a lot of info from Twitter and there are some shocking stories. Serious reality for me, DNAR forms. My GP rang me at the beginning of my shielding and said he had to fill these forms in. Me, my mum, my sister, and one of my PA's had already had a long chat about it. The GP agreed we would have a chat each time I'm ill with everyone who matters to me. The last of bit of reality is that I think that me, and people like me are becoming invisible....maybe forgotten. Finishing on a bright note, check out my live stream gig on Saturday. (www.facebook.com/events/246990149747568/) |
AuthorHello, I'm Christian, welcome to my blog. Archives
October 2021
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